Archive for the Charcot Marie Tooth Tag

Defying Gravity- How the ZeroG Changed Everything

After more than 40 years in a wheelchair, I thought I understood my body’s limits. I knew what I could and couldn’t do, what I could ask of my muscles, and how far gravity would let me go before it won. But once I met the ZeroG Gait and Balance System,  everything changed! It wasn’t just a piece of rehab
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Neurokinetix 2022: Not Your Average Physical Therapy

Neurokinetix was a miraculous experience.  Coordinating drivers, socializing with friends, and the neurological rehabilitation program itself, changed my life in every way. My Angel Lift drivers lovingly, punctually, and safely transported me from Dallas to Fort Worth every Monday, Wednesday, and Friday. In the beginning, even the car ride had a tendency to be grueling. Sitting still was impossible as
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Epigenetics: A Fresh Approach to CMT

After cutting a small lock of hair off the back of my head, it was placed inside a Ziploc baggie, tucked into a conventional, white envelope, and shipped to Loveland, Colorado. A town akin to Breckenridge; a place reminiscent of fond Rocky Mountain ski trips. Memories came flooding back. Here, I mastered adaptive snow skiing with new friends, while also
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Hope, Superman, and the CMT Research Foundation

Scraped knees, scabbed elbows, and bruised toes were hazards of walking as a child. Falling was normal. As birthdays passed, walking became more difficult. Occasionally, my dad would hold my hand when walking. Not only a sign of affection, but a source of balance and stability. His large hand would instinctively clinch my tiny one upon the buckling of my
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