Archive for the 'Charcot Marie Tooth' Category

Joy Rides to Fort Worth: An Angels Lift Photo Journal

The greatest gift a person can give another is just to show up. And they did! The majority I knew, some I had not seen in decades, and others I didn’t know at all! Over 29 people have shown up since June 20, 2022… Not just once, but most over and over again.  When I first started at Neurokinetix, for
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Neurokinetix: Wrangling Rides to Cowtown

“Never been one to ask for help. Need a mountain moved, I moved it myself….”, are the first couple lines to one of my favorite country songs by Matt Stell. Asking for help is difficult. The last thing you want to do is to inconvenience or bother someone at the risk of setting yourself up for rejection or seeming selfish.
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First Day at Neurokinetix

A mixture of enthusiasm, nervousness, impatience, and readiness gently awoke me from my slumber on June 20, 2022 at 5:30 AM. My first day, EVER, of physical rehabilitation was about to begin at Neurokinetix. After months of waiting for this day to come, its arrival was hard to believe. Like a student on the first day of school, the angst
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MOO-ve Over Vegan Diet… and Other Epigenetic Results

Results are in! And, if the traditional game of Pin the Tail on the,.. well, in this case COW, reflects my general health, I would have missed the targeted hindquarters, and slapped the tail on the utter. At least I hit the right end of that ol’ heifer! My hope is to scoot the tail closer to its God given
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Epigenetics: A Fresh Approach to CMT

After cutting a small lock of hair off the back of my head, it was placed inside a Ziploc baggie, tucked into a conventional, white envelope, and shipped to Loveland, Colorado. A town akin to Breckenridge; a place reminiscent of fond Rocky Mountain ski trips. Memories came flooding back. Here, I mastered adaptive snow skiing with new friends, while also
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